KEI letter to Roche requesting voluntary license to patents on risdiplam, a treatment for Spinal Muscular Atrophy (SMA)

This is a letter to Roche requesting a voluntary license to the patents on risdiplam, a treatment for Spinal Muscular Atrophy (SMA). KEI-Risdiplan-patent-license-request-8july2022 This was the August 5, 2022 response from Roche. Roche-Response-to-Risdiplam-license-request–5Aug2022 KEI wrote to Roche again on February… Continue Reading

Human Rights Council heats up during informal talks on inequality, international solidarity, and intellectual property

UPDATE: On Monday, 4 July 2022, a revised version of the Core Group’s access to medicines, vaccines, and other health products resolution (A/HRC/50/L.13) was circulated. The current co-sponsors include: Argentina, Brazil, China, Ecuador,* Egypt,* India, Indonesia, Malaysia, Namibia, Nepal, Paraguay,… Continue Reading

Constituency statement for Knowledge Ecology International, Health Action International, Oxfam, and Public Services International: Strengthening WHO preparedness for and response to health emergencies

On 24 May 2022, I delivered the following constituency statement on behalf of Knowledge Ecology International, Health Action International, Oxfam, and Public Services International on the following topic: “16.2 – Strengthening WHO preparedness for and response to health emergencies” at… Continue Reading

White smoke emerges from WHO negotiations on a resolution on Strengthening clinical trials to provide high-quality evidence on health interventions and to improve research quality and coordination

At around 10 PM on Friday evening, 20 May 2022, member states of the World Health Organization (WHO) negotiating on a resolution titled, Strengthening clinical trials to provide high-quality evidence on health interventions and to improve research quality and coordination,… Continue Reading

NIH Questioned about Xtandi and March-in Rights during Congressional Hearing

On Wednesday May 11, 2022, the National Institutes of Health (NIH) was asked about Xtandi and march-in rights during a Congressional hearing. The House Appropriations Committee held a hearing on the FY2023 Budget Request for the NIH, and Representative Mark… Continue Reading

SCCR 42: KEI Statement on a proposal by the African Group for a Draft work Program on Exceptions and Limitations

On Wednesday, 11 May 2022, Knowledge Ecology International (KEI) delivered the following statement on a proposal by the African Group for a Draft work Program on Exceptions and Limitations. Knowledge Ecology International supports the Proposal by the African Group for… Continue Reading